#sudep 5/5

Oct 19, 20222 min read

SUDEP Action Day: October 19, 2022 WORLDWIDE

I ask everyone to WEAR PURPLE TODAY. Start the conversation and spread #SUDEPAwareness, on this designated day. What is SUDEP Action Day?...

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Jul 6, 20222 min read

JUNE GLITCH ROLLER COASTER = JULY GLITCH HOPE!

All Glitch gear WILL be NEW come August, so BUY NOW any of the current items! MY FAMILY ROCKS! My last post has been a while, due to my...

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Jun 15, 20225 min read

June15th Anniversary of when stitches came out of my RNS implant in 2017 & June 1st Mayo update

Hard to believe it's been now officially 5 years since our family's journey began with my RNS Implant device. Below you will see this was...

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Mar 12, 20222 min read

Daylight Savings/Change of sleep pattern & Epilepsy

As a reminder daylight savings time begins at 2am on Sunday, March 13. Clocks will be turned forward an hour. This of course is great to...

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Dec 31, 20214 min read

Bring on 2022 with positivity by spreading more #EpilepsyAwareness = YOU get NEW Gear Discounts!

Grief & those that live with Epilepsy: There is no doubt that 2021 brought on more loss of loved ones or knowing some one that did via...

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Dec 10, 20213 min read

Friday is for treasuring family & friends!

Today was supposed to be about my potential Cardiac Seizures and explain what they are, but this has been a crazy week and I want to...

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Oct 26, 20211 min read

It's Halloween Sunday = Purple Pumpkins

Why not spread your family or friends #MyGlitch Awareness with a little fun in decorating and or painting your pumpkins purple. It's fun...

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Oct 20, 20213 min read

SUDEP ACTION DAY 2021

SUDEP is a very scary term to many individuals and families live with on a daily basis. Many times those that live with their own...

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Oct 14, 20212 min read

Nannie spoke to me last night

This may sound crazy to many of you, but today (October 14th) would have been my Nannie's 105th Birthday and she must of thought I needed...

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