Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling.
Annual International Epilepsy Day was February 10th
My plan as I shared on Twitter, was having malfunctions yesterday being able to get this site working. Turns out it was a mental error. I want to say thank you for all that shared my blog on various sites, and those that said they went and got caught up on our family journey living with MyGlitch. Also, thank you to those who shareed their personal stories with me, and or asking questions about Epilepsy.
How does your epilepsy effect your cognitive skills along with memory
This is a big question I received from many. There are areas I can work on improving and others that I need to just remind mysekf there is nothing I can do. YES. there are many types of epielpsy and depending on the type it can directly effect your cognitive skills.
One thing I get very frsutrated with is my memory decline. At times I may not remember a complete convo and swear it never happened. Hence; I may have the same convo multiple times a day. (so friends & family thank you for your patience) Remembering names and faces are very tough for me. The hardest thing is the loss of treasured events in my life which brings me to tears. I go through pictures to help me, and if I absolutely can't recall then Brent helps me.
Things I do can help improve my brain function
Being a perfectionist and having OCD, does not help my self esteem when brain glitches happens. One item I was taught in PRC was making sure you have a daily routine to follow. In some areas it was good and others due to my OCD it made things worse. This is a work in progress.
My sons' always loved building legos and to this day still do them. This is one thing I added for me to do when possible. It forces my brain to follow very detailed instructions. It amazes my sons how at times I read the directions backwards and so one step in the building the lego does not work. At times I may say a few choice words when I screw up, and learned I neded to take a brain break. It may take me a week to finish a lego, but at least I don't give up. I would have not too long ago. I experience hand tremors, making it hard to hold legos.
Grogu is my guy, i LOVE from Star Wars
Reading various types of books with a goal of a chapter a day. This also, helps with how I speak internally to myself. At times, I may have to look up a word to understand what I read and I may also have to go back and re-read a chapter as I can't recall anything. Not one day is the same. Feel free to give book suggestions!
Just some recent completed readings. All VERY different persepctives.
Daily morning activities are wordle. A fun way for the 4 of us to compete:) Doing a crossword search book, 4 of them is always the goal. Do journaling to do a brain dump of bad thoughts and switch them to a positive goals for the day. Journaling it something I need to be better at. Mornings are usually tough for me, so doing seated activites are better to get the mind working.
Proud to say I have completed this word search book today! I did skip journaling.
Thank you to all that sent questions. I will be doing another blog next week.
Keep the questions/comments coming!
Follow me on twitter @RissEKUParmer for daily epilepsy teachings.
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