The Online Epilepsy Community Is Part Of Team Parmer
It wasn't until I began my blog, I realized how many living with various types of epilepsy across the globe support each other. It doesn't matter if it is an adult living with epilepsy, a parent of a child with epilepsy, a family member, or just going through being diagnosed. Many are controlled while others are still trying to find that special treatment to be controlled. Some have reached out to me me via DM on Twitter, text, email, comment on blog for a few examples.
Fortunately; I have always had family and close friends while others do not and count on this amazing online community, I feel blessed to be a part of. Many of us cannot drive and so this community provides an outlet to talk about what is going on, and complications we are running into. While we can also talk about finding the positives in having epilepsy when having such hard days to lift each other up.
I wanted to let all of you know that Team Parmer sends a huge purple hug for being there for me, when my family may not understand at times what I am feeling.
The Online Trolls Which Take Advantage Of My Trust & The Epilepsy Community
Unfortunately; I am also learning the negative side of always being too trusting and online it has hit me hard at times:( So if I ask detailed questions to you when message, it is because I have been burned a few times now. I am doing my best for myself and others living with epilepsy to not get burned. With me as well given my memory I may not always recall you reaching out and I may ask the same questions again, so my apologies but I have learned the hard way now it is much needed. To the TROLLS that are hitting our epilepsy community, shame on YOU!
Epilepsy Awareness Is Growing Due To The Online Epilepsy Community
The upside to this large presence, epilepsy awareness is growing across the globe. Many have always thought those that have epilepsy are on the floor convulsing when in fact there are so many forms of epilepsy which you may never know someone like me even lives with the daily struggle. I call it the "invisible epilepsy". Even I am learning more about epilepsy just by talking with others, and discussing various treatments and medications based on their type. It truly is amazing how this community is striving to raise awareness, so that maybe someday a cure will be found. In fact Epilepsy Awareness was even trending on Twitter, never thought I would see that day.
To all of you out there in this epilepsy community, THANK YOU for the continuous support to me which helps me through my daily struggles and have faith in what I am doing via my blog.
I would love to share your names or stories, but due to the online TROLLS I will not. I would love to share your story or your books, blogs etc. but only if you reach out and want to be shared.
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