Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by sommeone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling.
Now time to move Bryce into a new apartment
These years have flown by and Bryce is moving into a new apartment for his last semester, as he graduates a semester early in December at ERAU with honors. We are so proud of all he has accomplishments! Having to move for just one semester not so much.(just teasing Bryce) Yet, who knows he might find a job down there. He said he is a tired of the heat, and would like to be back having a true four seasons. Now though if anyone out there has connections for Aerospace Engingineering, he would live anywhere. Had to place a plug in there:)
We only had Saturday and Sunday, but of course no matter how old your children get you want to do everything you can for them. So moved all the furniture, groceriies and Sam's Club to make sure he was stocked up for a while.
Brent and Bryce were able to get a few things done. He collects NASA/launch patches, comics and can place tohether a 1000 plus lego with an hour. I guess maybe all those legos got him into Engineering.
Brent of course bought some containers to
display the comics in their wrapper on wall:)
These are only some of the patches,
others Brent made inside coffee table for him:)
Can you say he likes spoiling his boys even at this age, as we don't see them much.(Now Brent tries to say I spoil them, hmmmm) Of course, I was told to go laydown after lifting all up all things 4 floors, yes this place does not have an elevator. Hugs to say good bye, and it was quick.
Monday Mayo Appointment
I knew walking into this appoiintment it was not going to be goood news. I had been having really rough nights sleeping due to my nocturnal seizures and not to mention the hot flashes on top of those. Hence when that happens, most days are pretty hard too. It's been so many years now he doesn't have me log my seizures because my body feels them and with the RNS he can see most of them. His first question always well how has it been, and I always say well not to great. He always says Marissa, Marissa what are we going to do with you with the kindest smile. Always asks Brent too what he has seen, anything different etc.
My dr is so kind, and as frustrataed as we are. I hold up the wand to see current brain waves. Then, he shows where some have been very active and asks if there was storms that day or something going on, extra stress etc. He changes the algorityhm based on what was seen. He broought up that he wanted to place me on a brand new med that has had lots of succeess in trials so far. I said only if I can please get off another med, because I feel I am just on too many.
Not doing well along with new medication change, so tough desicion
I quickly explained my brother and sister-in-law was waiting to drive me up to OH for my Pap-Pap's furnernal on Tuesday. At the same time I could see My DR and Brent look at each other, and I couldd see what they were feeling. Both the dr and Brent said we know how your mom and dad will be worried about t you the whole time there. he said going off a med and going on another and you haven't being doing well to begin with. But that Is your descion. Brent said honey, I know you want to be there but you will also make it harder on your mom and she needs to grief and it will also be bad then for you. I quickly texted my brother and said I would not be able to go. I cried on the drive home, but also knew it was best for me and my family. Brent as always was making ne feel better and bringing some laughs.
Day of my PapPap's furneeral
This day was not easy for me, knowing my whole fmaily was in OH celebratin the life of PapPap, and I was home due to these darn seizures. So pulled out some pics of PapPap and told Alexa to play "You Are My Sunshine" This was the song that he sang to all his grandkids, and happenens to be what I sang to my baby boys. (I never knew there was so many versions, gave me a bit of a laugh lol)
I cried, I danced(he always loved to), and got a big hug from my husband when he git home. Sometimes the hardest decsions aret the right ones. Later talking to my mom rhe next day I knew I made the right one.
Married 78 years and always smiling
No matter your GLITCH, do the right thing for yourself! #EpilepsyAwareness
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