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National PURPLE Day!

Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling.


What is Epilepsy Awareness Day?

Epilepsy Awareness Day is GLOBAL wide day which always falls on March 26th. The goal is to increase the public's knowledge of a neurological condition affecting nearly 50 million people worldwide. Also known as Purple Day, people are encouraged to wear purple in support of epilepsy awareness. 

The neurological condition, epilepsy, impacts the central nervous system causing seizures and other symptoms. Which from me you know it as MyGlitch. Not one seizure is the same for every person, and much more awareness and kowledge is needed for research.

Sometimes no known cause can be found for epilepsy in a patient. Epilepsy is NOT contagious, at any age you can develop epilepsy. There are many myths people assume you have to learn you have epilepsy as a child or it has to be in your family. BOTH of these are FALSE. For most, their epilepsy can be controlled through medications or other soloutions.

However; for those such as myself remain to have un-controlled epilepsy. The types of epilepsy I have has changed over the years, but my family and I will not let this stop ourlives from living!

How did PURPLE Day begin?

In 2008, Cassidy Megan of Nova Scotia, Canada launched PURPLE DAY to encourage awareness of epilepsy and to cast away some of the myths that cloud the general public's view of the condition. While other awareness observances existed previously, Purple Day and its founder continue to gain a following and awareness is spreading around the globe.

There are MANY ways to celebrate PURPLE Day!

Start by going back through my blog posts, to learn all you can about our familes journey with me living with uncontrolled epilepsy.

Please also share my blog link with others,

to spread Epilepsy Awareness on this special day!

  • Join the Purple Day movement. 

  • Learn more about epilepsy through various Epilepsy Foundations

  • Show your support by wearing purple, take a pic and post on SM

  • Take a selfie of yourself or a group pic with others. Then send it to someone living with epielpsy to let them know, they are not alone.

  • Call up someone living with epilepsy. Those that are uncontrolled, are not allowed to drive and so just a phone call means the world to them! Even better, go visit!

  • Volunteer at a fundraising event and or your local Epilepsy Foundation if you have one in your town. Many cities have Epilepsy Awareness walks throughout the spring and some during Epilepsy Awareness Month in November.

  • If you or someone you know has epilepsy, speak up, and help eliminate the stigma associated with epilepsy.

  • Know the signs of a seizure and what to do. Teach this at your local school, workplace, church etc.

  • Donate to your local Epilepsy Foundations for research and or to someone who might have a Go Fund Me page to asist with the costs of epilepsy.

  • Use #EpilepsyAwarenessDay or #PurpleDay to post on social media.

THANK YOU!

To all that have supported and continue to support our

family and the many others living with epilepsy.

We have lived in various states, and everywhere we go we teach

many what epilepsy can be, and how it is for our family.

Remember if you have followed along with various MyGlitch blog posts,

you have learned not ONE PERSON lives with epilepsy the same way.

Since I do NOT "LOOK" like I live with epilepsy many are surprised

of all there is with this invisible condition known as epilepsy.

For those that are willing to learn and stick around,

means the

WORLD to TEAM PARMER!

To say I have PURPLE in our house is an understament,

and this is not even all of it.

Check out the picture below and you might just see something you gave our family. My apologies I couldn't fit it all.



 
 
 

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diana
Mar 27
Rated 5 out of 5 stars.

This post is so informative and full of inspiration & hope. I could feel your determination and strong spirit in every word. 💜💜💜💜💜

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Marissa DeVaul Parmer
Marissa DeVaul Parmer
Apr 01
Replying to

Thank you Diana. It is not always easy day to day but will fight and raise awareness as much as we can. I will always have a passion for spreading awareness if it can help anyone, then I consider that a success.💜

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