Good morning to ALL my fellow Epilepsy Warriors,
THIS IS YOUR DAY!
What is International Epilepsy Day?
This day is always recognized on the 2nd Monday in February.According to the Epilepsy Foundation it started in 2015 and was organized by Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE).
This day provides various platforms for those living with epilepsy to share their personal stories with a global audience, and it also calls for ALL people to help advocate for those living with epilepsy, their families and their communties. Many living with epilepsy deal with discrimantion in various locations due to many misconceptions of epielpsy itself. At times this is actually more difficult then the actual seizures. (this is not true in all cases)
Despite being one of the world's oldest known medical conditions, it continues to be the most feared by the general public and least funded to find cures. People with epilepsy die prematurely at a higher rate compared to the general population and many other nuerological diseases. The most common is known as SUDEP: Sudden unexpected death in epilepsy.
So this day is to raise epilepsy awareness, educate,and advocate the general public on a worldwide stage of FACTS, not MYTHS. Epilepsy needs much needed funding to improve research to create better treatment options, for those like myself who continues to be uncontrolled.
How can you help those of us on this International Epilepsy Day?
Now that we have this great thing called Social Media...
It can be used for a good thing.
I KNOW many of you out there have some type of SM: Instagram, Twitter, FaceBook, TikTok, and more, and if you don't there is the good old fashion email, phone call or text to spread epilepsy awareness.
Use these hashtags when you do something: #EpilepsyIs #EpilepsyDay #InternationalEpilepsyDay2023 #StreamForEpilepsy(This one is for my gamers or TikTok)
I also ask that you tag me on IG @rissparmer on Twitter @RissEKUParmer or comment on my FB page @MyGlitch and or comment right here on my blog page.
The Foundation asks that you tag them as well, so we reach as many people as we can @IntEpilepsyDay and @EpilepsyFdn
Please also tag anyone you know that battles daily, to let them know you have their backs and care and love them!
What are some ideas to do? (make sure use hashtags & tag)
1) Post a pic/selfie of you wearing something purple
If you don't have anything purple, be creative, by making a sign with you holding it that you support those living with epilepsy celebrating today
2) Change your headers to all purple,
or go to the Epilepsy Foundation page for graphics you can also use if you don't want to just make it purple
3) Go to the Epilepsy Foundation page (epilepsy.com) and learn FACTS vs Myths on Epilepsy and educate yourself, then share with others
4) Learn Epilepsy First-Aid, and post these posters around your location of work, school, home
5) Find events online from around the globe, via zoom or you might have a local event
6) Begin a fundraiser to raise knowledge on epilepsy, this can be done via your local or the main Epilepsy Foundatiion or check with your local church
7) Text or call someone you know that battles epilepsy, so they know you care and they feel comfortable talking about facts with you and ask questions to learn something new
8) Follow Epilepsy pages on various SM platforms and they will be RT facts all day today, and then you RT to your page
9) I personally would LOVE for you to just share my blog #MyGlitch to spread the word about our family living with uncontrollable epilepsy and or share my FB page MyGlitch. Then I can continue to share our story, and share facts beyond this day.
10) OR JUST Be creative and come up with anything, lets just GET THE WORD OUT THERE & EDUCATE AND ADVOCATE FOR THOSE LIVING WITH EPILEPSY!
So I just got 2 of my favorite mama's boys texts just now as I was typing, this is what I mean by showing those that live with Epilepsy you love them. LOVE YOU BOYS! You definitely know how to make a mama's heart full:)
Even just waking up to go attend their college classes they sent me a quick selfie in the purple shirts, they have:) See, something so simple to celebrate #InternationalEpilepsyDay2023
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